Lung Cancer MRR

Change History

Title

DDCN 2012 / 06

To remove all references to 'Health Solutions Wales', 'Business Services Centre' and 'Information Products Unit' and replace with 'NHS Wales Informatics Service'

CDSCN 2011 / 02

All Wales Lung Cancer Minimum Reporting Requirements v4.0 including Core Reporting Items v5.0

 

 

Data Items Lung Cancer Minimum Reporting Requirements

 

 

Summary Table of Reporting Requirements

 

 

The following tables outline the matrix of data items against reporting requirements.

 

 

ALL WALES LUNG CANCER MINIMUM REPORTING REQUIREMENT V4.0

 

Key: ENCDv4.5b = English National Cancer Dataset version 4.5b; matched data item

SPCDv1.0 = Specialist Palliative Care Dataset version 1.0; matched data item

NLCA = national lung cancer audit

LCI = Lung Clinical Indicator

 

 

Summary of Reporting Data Items:

Minimum Reporting Requirements

Core

Lung Site Specific

National Cancer Standards

WCISU: Cancer Registry

AOF: CWT

NLCA

Lung Clinical Indicators

Section 1: Identification of Patient

NHS Number

ü

ü

ü

ü

 

Birth date

ü

ü

 

ü

 

Sex

ü

ü

 

ü

 

GP practice code

ü

ü

 

 

 

Ethnic group

ü

ü

 

 

 

Case record number

ü

ü

 

 

 

Patient’s name(s)

ü

ü

 

ü

 

Patient’s address at date of diagnosis

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ü

 

 

 

Patient’s postcode at date of diagnosis

ü

ü

 

ü

 

Section 2: Referral

Source of (cancer) referral

ü

 

 

ü

 

Organisation code (referred to)

ü

 

 

ü

ü

Consultant code (referred to)

ü

 

 

 

 

Date of receipt of cancer referral

ü

 

 

 

 

Presentation of disease at referral

ü

ü

ü

 

ü

Date of cancer referral

 

 

 

ü

 

Date first seen

 

 

 

ü

 

Section 3: Key Investigations

Cancer imaging modality

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ü

 

ü

ü

Date of investigation

ü

ü

 

ü

 

Cancer sampling modality – Lung

 

 

 

ü

 

FEV1 (Forced Expiratory Volume in 1 second) absolute

 

 

 

ü

 

FEV1 (Forced Expiratory Volume in 1 second) percentage of predicted

 

 

 

ü

 

Section 4: Diagnosis

Date of diagnosis (cancer registry definition)

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ü

 

ü

 

Basis of diagnosis (cancer registry definition)

ü

ü

 

ü

 

Primary cancer site

ü

ü

 

ü

ü

Pre-treatment morphology

ü

ü

ü

ü

ü

Pre-treatment staging agreed by the multi disciplinary team cT (clinical Tumour) stage

ü

ü

 

ü

ü

Pre-treatment staging agreed by the multi disciplinary team cN (clinical Node) stage

ü

ü

 

ü

ü

Pre-treatment staging agreed by the multi disciplinary team cM (clinical Metastasis) stage

ü

ü

 

ü

ü

Laterality of cancer

 

ü

 

ü

 

Final pre-treatment stage grouping

 

ü

 

ü

ü

Section 5: Multi Disciplinary Team Outcomes

Treatment plan discussed by the multi disciplinary team

ü

 

 

ü

 

Multi disciplinary meeting identifier

ü

 

 

 

 

Date treatment plan discussed by the multi disciplinary team

ü

 

 

ü

 

Cancer treatment plan intent

ü

 

 

ü

 

Reason for no specific anti-cancer treatment

ü

 

 

 

 

Final pre-treatment performance status agreed by the multi disciplinary team

ü

ü

 

ü

ü

Planned cancer treatment type

ü

 

 

ü

 

Treatment type sequence

ü

 

 

 

 

Organisation code (planned cancer treatment type)

 

 

 

ü

 

Co-morbidity index

 

 

 

ü

 

Did the co-morbidity change the treatment the patient received?

 

 

 

 

 

Lung clinical nurse specialist seen

 

 

 

ü

 

Date lung clinical nurse specialist first seen

 

 

 

ü

 

Section 6: Surgery

Surgical intent

 

ü

 

 

 

Date on which surgical procedure(s) carried out

 

ü

 

ü

ü

Surgical procedure(s) carried out

 

ü

 

ü

ü

Site code (of surgery)

 

ü

 

ü

 

Section 7: Pathology

Date specimen taken

 

ü

 

 

 

Histological diagnosis

 

ü

 

ü

ü

Grade of differentiation

 

ü

 

 

 

T (Tumour) category (pathological)

 

ü

 

ü

ü

N (Node) category (pathological)

 

ü

 

ü

ü

M (Metastasis) category (pathological)

 

ü

 

ü

ü

Pathological stage grouping

 

ü

 

ü

 

Excision margin(s) status

 

 

 

ü

 

Section 8: Drug Therapy

Date treatment started (drug therapy)

 

ü

 

ü

ü

Treatment intent (drug therapy)

 

ü

 

ü

 

Drug therapy type

 

ü

 

 

 

Section 9: Radiotherapy

Date treatment started (radiotherapy)

 

ü

 

ü

ü

Treatment intent (radiotherapy)

 

ü

 

 

 

Radiotherapy type

 

ü

 

ü

 

Anatomical treatment site (radiotherapy)

 

 

 

ü

 

Section 10: Palliative Care

Member of specialist palliative care team seen

 

ü

 

 

 

Section 11: Clinical Status Assessment

Date of death

 

ü

ü

ü

 

Complications / toxicity at clinical status assessment

 

 

 

ü

 

Section 12: AOF: Cancer Waiting Times

Priority of referral

 

 

ü

 

 

Date of decision to treat

 

 

ü

ü

 

Date of start of first definitive procedure

 

 

ü

 

 

First procedure

 

 

ü

 

ü

Suspension start date

 

 

ü

 

 

Suspension end date

 

 

ü

 

 

Reason for breach

 

 

ü

 

 

Section 13: Clinical Trials

Entry indicator

 

ü

 

ü

ü

Total number of data items: 73