Information Specification

The data items required for National Cancer Data Standards for Wales – Site Specific - Lung and their equivalent labels in COSD V9.0, where there is an equivalent, are listed below.

 

Where the specification cites NHS Wales Data Dictionary, please refer to the Dictionary for the relevant guidance i.e. definition, format, or code list.

 

For consistency, all dates listed in the Specification are standardised as ccyymmdd.

 

Where D is denoted in Status, this indicates that the information should be derived from another data item. This typically occurs with data items that are simply text representations of their code counterparts. Other Status codes are M (Mandatory), R (Required) – the data item should be recorded where applicable and O (Optional).

 

 

Core data items should be collected for all cancers.  To reduce replication of information, Core data items have not been listed in this site-specific Standard and users should refer to National Cancer Data Standards for Wales 1. National Cancer Data Set - Full list DSCNs.xlsx (live.com) for a list of Core requirements. However, in some cases, the site-specific application of Core data items may differ e.g. a particular tumour site may require additional or fewer codes to those already published in Core, or perhaps have additional business rules as to how the Core data item should be coded. Where this occurs, the Core data item will be replicated in the site-specific Standard with the respective additional site-specific detail. These are flagged in the following table with an * next to the data item name.

 

 

For data items used in the National Cancer Data Standards for Wales that already exist within the NHS Wales Data Dictionary. These data items have been flagged with an † next to the data item name, as whilst this introduces a change to an existing information standard, the immediate use of this mandate will be used as a framework for the development of the CIS, therefore service/data providers should continue with ‘business as usual’ in terms of the data being collected and reported.

 

 

 

National Cancer Data Standards for Wales – Lung

 

Reporting Data Item

Definition

Format

Code List (Code)

Code List (Text)

Status

COSD

Identification of Patient

Age at Date of Diagnosis

Record the patient age at diagnosis.

Note: This is a derived data item from Date of Birth and Date of Diagnosis

an3

N/A

N/A

D

N/A

Diagnostic Procedures

Transthoracic Echocardiogram Result

The Transthoracic Echocardiogram left ventricular ejection fraction result

Note: This is required where U20.1 is recorded for Diagnostic Procedure (OPCS) or 434158009 is recorded for Diagnostic Procedure (SNOMED)

max n3
% Range 0 - 100

N/A

N/A

M

Transthoracic Echocardiogram Result (LU10350)

Diffusion Capacity (DLCO or TLCO) Result

The diffusion capacity (DLCO) or transfer factor of the lungs for carbon monoxide (TLCO) result (% predicted) (0-200)

max n3
% predicted. Range 0 - 200

N/A

N/A

M

Diffusion Capacity (DLCO or TLCO) Result (LU10310)

FEV1 Absolute Value

The absolute value of the patients Forced Expiratory Volume in the first second in litres

max n1.max n2
Range 0.10 - 9.99

N/A

N/A

R

FEV1 Absolute Value (LU10050)

FEV1 Percentage 

The Forced Expiratory Volume in the first second as a percentage of the predicted value

max n3
Integer. Range 1 to 200

N/A

N/A

R

FEV1 Percentage (LU10040)

Cardiopulmonary Test Type

Indicate which cardiopulmonary test was used

Code List

1

Incremental shuttle walk test (ISWT)

R

Cardiopulmonary Test Type (LU10420)

2

Oxygen consumption (VO2)

Cardiopulmonary Exercise Test Result (NLCA)

The Cardiopulmonary Exercise Test result

max n3
% predicted. Range 0 - 200

N/A

N/A

R

Cardiopulmonary Exercise Test Result (NLCA) (LU10370)

Bronchoscopy Performed Type

What type of Bronchoscopy was performed on the patient?

Code List

1

Flexible Bronchoscopy

M

Bronchoscopy Performed Type (LU10400)

2

Rigid

3

Endobronchial Ultrasound (EBUS) - Diagnostic

4

Endobronchial Ultrasound (EBUS) - Staging

9

Not known

Mediastinal Sampling Indicator

Record if the patient had a mediastinoscopy, mediastinotomy, open mediastinal sampling or other type of mediastinal biopsy (e.g., Endobronchial ultrasound or transbronchial needle aspiration biopsy). 

Code List

Y

Yes

R

Mediastinal Sampling Indicator (LU10060)

N

No

9

Not known

Biomarkers (One occurrence of this group per Core )

Epidermal Growth Factor Receptor Mutational Status

Select the recorded outcome for the Epidermal Growth Factor Receptor Mutational status.  

Code List

07

Wild Type

R

Epidermal Growth Factor Receptor Mutational Status (LU10090)

08

Sensitising/activating mutation(s) only

09

Resistance mutation (to 1st gen TKIs) - with or without other mutation

98

Not Applicable (Not Assessed)

99

Not Known (Failed Analysis)

ALK Fusion Status

Select the recorded outcome for the Anaplastic Lymphoma Kinase (ALK) Gene Fusion Status

Code List

1

Positive

R

ALK Fusion Status (LU10500)

2

Negative

3

Indeterminate/Test Failed

8

Not Applicable (Not Tested)

9

Not known

ROS1 Fusion Status

Select the recorded outcome for the ROS 1 Gene Fusion Status

Code List

1

Positive

R

ROS1 Fusion Status (LU10510)

2

Negative

3

Indeterminate/Test Failed

8

Not Applicable (Not Tested)

9

Not known

PD-L1 Expression

Select the recorded outcome for the PD-L1 Expression percentage

Code List

1

Not Tested

R

PD-L1 Expression (LU10520)

2

<1%

3

1%-50%

4

>50%

5

Indeterminate/Test Failed

9

Not Known

PDL1 % Value

Specify the absolute % value of the PD-L1 expression

n3

N/A

N/A

R

N/A

Surgery (One occurrence per core surgery and other procedures)

Regional Anaesthetic Technique

Record the regional anaesthetic technique used on the patient

Code List

1

Epidural

R

Regional Anaesthetic Technique (LU10390)

2

Paravertebral Catheter

3

Other Technique

4

No regional anaesthesia

9

Not known

Pathology (One occurrence per pathology report)

Extent of Atelectasis

Extent of Atelectasis/obstructive pneumonitis

Code List

4

Extends to the hilar region, either involving part of the lung or the whole lung

R

Extent of Atelectasis (pLU10110)

5

None/less than the other category

Extent of Pleural Invasion

What is the extent of pleural invasion

Code List

1

No pleural invasion

R

Extent of Pleural Invasion (pLU10120)

2

Visceral pleural only

3

Parietal pleura/chest wall

Pericardial Invasion

Does the tumour invade the pericardium

Code List

Y

Yes

R

Pericardial Invasion (pLU10130)

N

No

9

Not known (Cannot be assessed)

Diaphragm Invasion

Does the tumour invade the diaphragm

Code List

Y

Yes

R

Diaphragm Invasion (pLU10140)

N

No

9

Not known (Cannot be assessed)

Invasion into Great Vessel

Does the tumour invade the great vessels (aorta, central pulmonary artery or vein)

Code List

Y

Yes

R

Invasion into Great Vessel (pLU10150)

N

No

9

Not known (Cannot be assessed)

Invasion into Heart

Does the tumour invade the Atrium or Heart

Code List

Y

Yes

R

Invasion into Heart (pLU10160)

N

No

9

Not known (Cannot be assessed)

Malignant Pleural Effusion

Is there evidence of malignant pleural effusion

Code List

Y

Yes

R

Malignant Pleural Effusion (pLU10170)

N

No

9

Not known (Cannot be assessed)

Invasion into Mediastinum

Does the tumour invade the mediastinum

Code List

Y

Yes

R

Invasion into Mediastinum (pLU10190)

N

No

9

Not known (Cannot be assessed)

Satellite Tumour Nodules Location

Record the most distant location of separate tumour nodules

Code List

1

Separate tumour nodules in same lobe

R

Satellite Tumour Nodules Location (pLU10180)

2

Separate tumour nodules in a different ipsilateral lobe

3

Separate tumour nodules in a contralateral lobe

4

No separate tumour nodules

9

Not known