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Change History |
Title |
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To remove all references to 'Health Solutions Wales', 'Business Services Centre' and 'Information Products Unit' and replace with 'NHS Wales Informatics Service' | |
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All Wales Head & Neck Cancer Minimum Reporting Requirements v6.0 including Core Reporting Items v5.0 |
Data Items Head & Neck Cancer Minimum Reporting Requirements
Summary Table of Reporting Requirements
The following tables outline the matrix of data items against reporting requirements
ALL WALES HEAD & NECK CANCER MINIMUM REPORTING REQUIREMENT V6.0
Key: ENCDv4.5b = English National Cancer Dataset version 4.5b; matched data item
SPCDv1.0 = Specialist Palliative Care Dataset version 1.0; matched data item
DAHNO = Data for Head & Neck Oncology
HNCI = Head & Neck Clinical Indicator
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Summary of Reporting Data Items: |
Minimum Reporting Requirements | ||||
|
Core |
Head& Neck Site Specific | ||||
|
National Cancer Standards |
WCISU: Cancer Registry |
AOF: CWT |
DAHNO |
Head & Neck Clinical Indicators | |
|
Section 1: Identification of Patient | |||||
|
NHS Number |
ü |
ü |
ü |
ü |
|
|
Birth date |
ü |
ü |
|
ü |
|
|
Sex |
ü |
ü |
|
ü |
|
|
GP practice code |
ü |
ü |
|
ü |
|
|
Ethnic group |
ü |
ü |
|
|
|
|
Case record number |
ü |
ü |
|
ü |
|
|
Patient’s name(s) |
ü |
ü |
|
ü |
|
|
Patient’s address at date of diagnosis |
ü |
ü |
|
|
|
|
Patient’s postcode at date of diagnosis |
ü |
ü |
|
ü |
|
|
Section 2: Referral | |||||
|
Source of (cancer) referral |
ü |
|
|
ü |
|
|
Organisation code (referred to) |
ü |
|
|
ü |
|
|
Consultant code (referred to) |
ü |
|
|
|
|
|
Date of receipt of cancer referral |
ü |
|
|
ü |
|
|
Presentation of disease at referral |
ü |
ü |
ü |
ü |
ü |
|
Date of cancer referral |
|
|
|
ü |
|
|
Date first seen |
|
|
|
ü |
|
|
Section 3: Key Investigations | |||||
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Cancer imaging modality |
ü |
ü |
|
ü |
ü |
|
Date of investigation |
ü |
ü |
|
ü |
ü |
|
Date investigation requested |
|
|
|
ü |
|
|
Date investigation reported |
|
|
|
ü |
ü |
|
Anatomical examination site (diagnostic investigation) |
|
|
|
ü |
|
|
Recorded height at presentation |
|
|
|
ü |
|
|
Date of recorded height at presentation |
|
|
|
ü |
|
|
Recorded weight at presentation |
|
|
|
ü |
|
|
Date of recorded weight at presentation |
|
|
|
ü |
|
|
Section 4: Diagnosis | |||||
|
Date of diagnosis (cancer registry definition) |
ü |
ü |
|
ü |
ü |
|
Basis of diagnosis (cancer registry definition) |
ü |
ü |
|
ü |
|
|
Primary cancer site |
ü |
ü |
|
ü |
ü |
|
Pre-treatment morphology |
ü |
ü |
ü |
ü |
|
|
Pre-treatment staging agreed by the multi disciplinary team cT (clinical Tumour) stage |
ü |
ü |
|
ü |
|
|
Pre-treatment staging agreed by the multi disciplinary team cN (clinical Node) stage |
ü |
ü |
|
ü |
|
|
Pre-treatment staging agreed by the multi disciplinary team cM (clinical Metastasis) stage |
ü |
ü |
|
ü |
|
|
Integrated staging agreed by the multi disciplinary team cT (clinical Tumour) stage |
|
|
|
ü |
|
|
Integrated staging agreed by the multi disciplinary team cN (clinical Node) stage |
|
|
|
ü |
|
|
Integrated staging agreed by the multi disciplinary team cM (clinical Metastasis) stage |
|
|
|
ü |
|
|
Laterality of cancer |
|
|
|
ü |
|
|
Final pre-treatment stage grouping |
|
|
|
ü |
|
|
Section 5: Multi Disciplinary Team Outcomes | |||||
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Treatment plan discussed by the multi disciplinary team |
ü |
|
|
ü |
ü |
|
Multi disciplinary meeting identifier |
ü |
|
|
|
|
|
Date treatment plan discussed by the multi disciplinary team |
ü |
|
|
ü |
ü |
|
Cancer treatment plan intent |
ü |
|
|
ü |
|
|
Reason for no specific anti-cancer treatment |
ü |
|
|
|
|
|
Final pre-treatment performance status agreed by the multi disciplinary team |
ü |
ü |
|
ü |
|
|
Planned cancer treatment type |
ü |
|
|
ü |
|
|
Treatment type sequence |
ü |
|
|
ü |
|
|
Co-morbidity index |
|
|
|
ü |
ü |
|
Head & Neck clinical nurse specialist seen |
|
|
|
ü |
|
|
Date patient informed of diagnosis |
|
|
|
ü |
|
|
Date GP informed of diagnosis |
|
|
|
ü |
|
|
Section 6: Surgery | |||||
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Surgical intent |
|
ü |
|
ü |
|
|
Date on which surgical procedure(s) carried out |
|
ü |
|
ü |
ü |
|
Surgical procedure(s) carried out |
|
ü |
|
ü |
|
|
Site code (of surgery) |
|
|
|
ü |
|
|
Section 7: Pathology | |||||
|
Date specimen taken |
|
ü |
|
ü |
|
|
Histological diagnosis |
|
ü |
|
ü |
|
|
Grade of differentiation |
|
ü |
|
|
|
|
T (Tumour) category (pathological) |
|
ü |
|
ü |
|
|
N (Node) category (pathological) |
|
ü |
|
ü |
|
|
M (Metastasis) category (pathological) |
|
ü |
|
ü |
|
|
Date of pathology report |
|
|
|
ü |
|
|
Pathology specimen type |
|
|
|
ü |
|
|
Specimen nature |
|
|
|
ü |
|
|
Excision margin(s) status |
|
|
|
ü |
|
|
Section 8: Drug Therapy | |||||
|
Date treatment started (drug therapy) |
|
ü |
|
ü |
|
|
Treatment intent (drug therapy) |
|
ü |
|
ü |
|
|
Drug therapy type |
|
ü |
|
ü |
|
|
Section 9: Radiotherapy | |||||
|
Date treatment started (radiotherapy) |
|
ü |
|
ü |
ü |
|
Treatment intent (radiotherapy) |
|
ü |
|
ü |
|
|
Radiotherapy type |
|
ü |
|
ü |
|
|
Anatomical treatment site (radiotherapy) |
|
|
|
ü |
|
|
Section 10: Palliative Care | |||||
|
Member of specialist palliative care team seen |
|
ü |
|
|
|
|
Palliative care start date |
|
|
|
ü |
|
|
Section 11: Clinical Status Assessment | |||||
|
Date of death |
|
ü |
ü |
ü |
|
|
Clinical status assessment date |
|
|
|
ü |
|
|
Primary tumour status |
|
|
|
ü |
|
|
Nodal status |
|
|
|
ü |
|
|
Metastatic disease status |
|
|
|
ü |
|
|
Section 12: AOF: Cancer Waiting Times | |||||
|
Priority of referral |
|
|
ü |
ü |
|
|
Date of decision to treat |
|
|
ü |
ü |
|
|
Date of start of first definitive procedure |
|
|
ü |
|
|
|
First procedure |
|
|
ü |
|
|
|
Suspension start date |
|
|
ü |
|
|
|
Suspension end date |
|
|
ü |
|
|
|
Reason for breach |
|
|
ü |
|
|
|
Section 13: Clinical Trials | |||||
|
Entry indicator |
|
|
|
ü |
|
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Total number of data items: 85 | |||||