Information Specification

Data Definition Type

Item Reference

Name

Format

Definition

Value Set / Example

Patient Details

MPDPX001X

NHS Number

10-character alphanumeric

See NHS Wales Data Dictionary for details of existing standard

e.g. 0123456789

Patient Details

MPDPX001A

NHS Number Status Indicator

N/A – code from associated value set

See NHS Wales Data Dictionary for details of existing standard

e.g.

01

Number present & traced

Patient Details

MPDPX002A

Local Person Identifier Origination

N/A – code from associated value set

The issuing system for the Local Person Identifier, e.g. PAS

Please refer to the technical specification for details

Use NULL for missing or N/A values

Patient Details

MPDPX002X

Local Person Identifier

10-character alphanumeric

See NHS Wales Data Dictionary for details of existing standard

e.g. 9876543210

Patient Details

MPDPX003X

Given Name

35-character alphanumeric

See NHS Wales Data Dictionary for details of existing standard

e.g. John

Use NULL for missing or N/A values

Patient Details

MPDPX004X

Family Name

35-character alphanumeric

See NHS Wales Data Dictionary for details of existing standard

e.g. Smith

Use NULL for missing or N/A values

Patient Details

MPDPX005X

Date of Birth

yyyy-mm-dd

See NHS Wales Data Dictionary for details of existing standard

e.g. 1950-01-31

Patient Details

MPDPX006X

Gender Identity

N/A – code from associated value set

See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard

e.g. F

Patient Details

MPDPX007X

Postcode

8-character alphanumeric

See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard

e.g. AB12 3CD

Use NULL for missing or N/A values

Document Details

MDDPX001X

Originating System

N/A – code from associated value set

For PROMs, this would be the PROMs platform that collects the PROMs information from the patient, e.g. DrDoctor, PKB, Amplitude, National Platform, etc.

Please refer to the technical specification for details

Use NULL for missing or N/A values

Document Details

MDDPX002X

Originating Organisation Code

N/A – code from associated value set

The code for the organisation from which the record originates

See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard

e.g. 7A100

Event Details

MEDPX001X

Treatment Specialty Code 

N/A – code from associated value set

This is the code for the pathway specialty at the time the PROMs form is generated

e.g. 100

Event Details

MEDPX002A

Senior Responsible Professional Name

100-character alphanumeric

The name of the person who has overall responsibility for the health/care event to which the record relates. Where possible, the standardised display format convention should be used, i.e. <FAMILY_NAME>”,_”<Given_name>”,_”<Title>

e.g. JONES, Alan N, Dr

Use NULL for missing or N/A values

Event Details

MEDPX002B

Senior Responsible Professional Identifier Code System

N/A – code from associated value set

An identifier that uniquely identifies the Senior Responsible Professional. This is their professional registration code

e.g. GMC

Use NULL for missing or N/A values

Please refer to the technical specification for details

Event Details

MEDPX002C

Senior Responsible Professional Identifier

N/A – code from associated value set

The code system for the Senior Responsible Professional Identifier

See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard

e.g. 2345678

Use NULL for missing or N/A values

PROMs Details

MPRPX001X

Event Location Code

N/A – code from associated value set

The code for the location where the health/care event took place

For PROMs, this is the code of the site where the PROMs form was initiated

See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard

e.g. 7A1A1

Use NULL for missing or N/A values

PROMs Details

MPRPX002X

PROMs Issued Date

yyyy-mm-dd

This is the date and time the PROMs form was issued to the patient

e.g. 2020-12-10

PROMs Details

MPRPX003X

PROMs Completion Date & Time

yyyy-mm-ddThh:mm:ss.s

ss+hh:mm

The date and time the PROMs form was completed (or when the last item was recorded for incomplete records)

If only the date component is captured, this can be provided without a time component, i.e. yyyy-mm-dd

For PROMs, this is the date when the form is completed by the patient,

e.g. 2020-12-10T13:30:10.999+00:00

PROMs Details

MPRPX004X

Referral Identifier

50-character alphanumeric

A locally-produced identifier which uniquely identifies the referral record

All PROMs questionnaires associated with the same referral must have the same Referral Identifier

Use NULL for missing or N/A values

PROMs Details

MPRPX004A

Referral Identifier Origination

N/A – code from associated value set

The issuing system for the Referral Identifier, e.g. PAS

Please refer to the technical specification for details

Use NULL for missing or N/A values

PROMs Details

MPRPX005X

PROMs Pathway Type

N/A – code from associated value set

The type of pathway that the PROM is associated to, e.g. lung cancer, heart failure, cataract, etc.

e.g. KNA

Please refer to the technical specification for details

For local pathways, use OTH - Other

PROMs Details

MPRPX006X

PROMs Tool

N/A – code from associated value set

The national code representing the PROMs tool associated with the PROMs record

e.g. OKS2

Please refer to the technical specification for details

For local tools, use OTH - Other

PROMs Details

MPRPX007X

PROMs Trigger Event Type

N/A – code from associated value set

The national code representing the type of healthcare or administrative event that triggers a requirement for a questionnaire (or onboarding process) to be completed

e.g. 14 - Pre-op assessment

Please refer to the technical specification for details

PROMs Details

MPRPX008X

PROMs Language

N/A – code from associated value set

The code representing the language of the completed PROMs form

en=English

cy=Welsh

71=Other

PROMs Details

MPRPX009X

Local PROMs Pathway Type

10-character alphanumeric

A locally-defined code to identify the PROMs pathway

This is only required for local pathways

e.g. ZZKNA

PROMs Details

MPRPX010X

Local PROMs Tool

10-character alphanumeric

A locally-defined code to identify the PROMs tool

This is only required for local tools

e.g. ZZOKS1

PROMs Details

MPRPX012X

PROMs Data Standard Version

N/A – code from associated value set

The version of the data standard used for the PROMs tool

This is usually the DSC Notice reference number found at the top right corner of the associated DSCN

e.g. 2023028 for EORTC QLQ LC13

Please refer to the technical specification for details

PROMs Details

MPRPX013X

PROMs Trigger Event Date

yyyy-mm-dd

The date of the event that triggers a requirement for a questionnaire (or onboarding process) to be completed, irrespective of the date that the PROMs form was triggered/issued

e.g. 2020-12-10 for a PROMs form triggered by a surgical event taking place on 10th December 2020

PROMs Details

MPRPX014X

Pathway Laterality

1-digit numeric

To capture the anatomical side associated with the healthcare referral / pathway record

Note that if a patient had been referred onto a pathway for interventions to both left and right sides and the Referral Identifier was common to both, then the Pathway Laterality would be ‘both left and right’

1

Left

2

Right

3

Both left and right

8

N/A

9

Unknown

PROMs Data Entry Details

MDEPX004X

PROMs Laterality

1-digit numeric

To capture the anatomical side associated with the questionnaire being completed

Note that if a patient completes a questionnaire for both left and right sides, two records should be generated and labelled as per the specified value set

Note also that this item is intended to capture the laterality specified as part of the patient’s PROMs pathway record as opposed to any patient reported laterality information which would be captured within the form itself

1

Left

2

Right

8

N/A

 

PROMs Trigger Event Type

 

Definition: A type of healthcare or administrative event that triggers a requirement for a questionnaire (or onboarding process) to be completed.

 

Format: 2-digit numeric

 

Code

Description

Definition

10

Onboarding

To be used for onboarding purposes, i.e. when registering a patient to receive a questionnaire in the future.

11

Primary care

For a questionnaire that is to be completed in primary care, prior to a referral to secondary care.

12

Referral

When a questionnaire is to be completed following acceptance of a referral.

13

Outpatient appointment

When a questionnaire is to be completed following the booking of an outpatient appointment

14

Pre-op assessment

When a questionnaire is to be completed following the booking of a pre-op assessment appointment. This is the pre-admission outpatient appointment scheduled just before the admission to assess the patient’s fitness to undergo surgery.

15

Intervention

When a questionnaire is to be completed after a health/care intervention. This only applies following receipt of confirmation that the relevant intervention, e.g. surgery, took place. 

16

Discharge

When a questionnaire is to be completed at the point of discharge, where a patient may be placed on a ‘see on symptoms’ or ‘patient-initiated follow-up’ pathway.

17

Clinician-initiated

This trigger event type is used when none of the other triggers apply and a questionnaire is to be completed at an undefined stage in the pathway at the request of a clinician.

18

Patient-initiated

This trigger event type is used when none of the other triggers apply and a questionnaire is completed at an undefined stage in the pathway.

71

Other

For use when no specific trigger event type applies.

91

Unknown

For use when the reason for triggering the questionnaire is unknown.