Data Definition Type |
Item Reference |
Name |
Format |
Definition |
Value Set / Example | ||||||||||
Patient Details |
MPDPX001X |
NHS Number |
10-character alphanumeric |
See NHS Wales Data Dictionary for details of existing standard |
e.g. 0123456789 | ||||||||||
Patient Details |
MPDPX001A |
NHS Number Status Indicator |
N/A – code from associated value set |
See NHS Wales Data Dictionary for details of existing standard |
e.g.
| ||||||||||
Patient Details |
MPDPX002A |
Local Person Identifier Origination |
N/A – code from associated value set |
The issuing system for the Local Person Identifier, e.g. PAS |
Please refer to the technical specification for details Use NULL for missing or N/A values | ||||||||||
Patient Details |
MPDPX002X |
Local Person Identifier |
10-character alphanumeric |
See NHS Wales Data Dictionary for details of existing standard |
e.g. 9876543210 | ||||||||||
Patient Details |
MPDPX003X |
Given Name |
35-character alphanumeric |
See NHS Wales Data Dictionary for details of existing standard |
e.g. John Use NULL for missing or N/A values | ||||||||||
Patient Details |
MPDPX004X |
Family Name |
35-character alphanumeric |
See NHS Wales Data Dictionary for details of existing standard |
e.g. Smith Use NULL for missing or N/A values | ||||||||||
Patient Details |
MPDPX005X |
Date of Birth |
yyyy-mm-dd |
See NHS Wales Data Dictionary for details of existing standard |
e.g. 1950-01-31 | ||||||||||
Patient Details |
MPDPX006X |
Gender Identity |
N/A – code from associated value set |
See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard |
e.g. F | ||||||||||
Patient Details |
MPDPX007X |
Postcode |
8-character alphanumeric |
See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard |
e.g. AB12 3CD Use NULL for missing or N/A values | ||||||||||
Document Details |
MDDPX001X |
Originating System |
N/A – code from associated value set |
For PROMs, this would be the PROMs platform that collects the PROMs information from the patient, e.g. DrDoctor, PKB, Amplitude, National Platform, etc. |
Please refer to the technical specification for details Use NULL for missing or N/A values | ||||||||||
Document Details |
MDDPX002X |
Originating Organisation Code |
N/A – code from associated value set |
The code for the organisation from which the record originates See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard |
e.g. 7A100 | ||||||||||
Event Details |
MEDPX001X |
Treatment Specialty Code |
N/A – code from associated value set |
This is the code for the pathway specialty at the time the PROMs form is generated |
e.g. 100 | ||||||||||
Event Details |
MEDPX002A |
Senior Responsible Professional Name |
100-character alphanumeric |
The name of the person who has overall responsibility for the health/care event to which the record relates. Where possible, the standardised display format convention should be used, i.e. <FAMILY_NAME>”,_”<Given_name>”,_”<Title> |
e.g. JONES, Alan N, Dr Use NULL for missing or N/A values | ||||||||||
Event Details |
MEDPX002B |
Senior Responsible Professional Identifier Code System |
N/A – code from associated value set |
An identifier that uniquely identifies the Senior Responsible Professional. This is their professional registration code |
e.g. GMC Use NULL for missing or N/A values Please refer to the technical specification for details | ||||||||||
Event Details |
MEDPX002C |
Senior Responsible Professional Identifier |
N/A – code from associated value set |
The code system for the Senior Responsible Professional Identifier See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard |
e.g. 2345678 Use NULL for missing or N/A values | ||||||||||
PROMs Details |
MPRPX001X |
Event Location Code |
N/A – code from associated value set |
The code for the location where the health/care event took place For PROMs, this is the code of the site where the PROMs form was initiated See NHS Wales Data Dictionary for details of NHS Wales Core Reference Data Standard |
e.g. 7A1A1 Use NULL for missing or N/A values | ||||||||||
PROMs Details |
MPRPX002X |
PROMs Issued Date |
yyyy-mm-dd |
This is the date and time the PROMs form was issued to the patient |
e.g. 2020-12-10 | ||||||||||
PROMs Details |
MPRPX003X |
PROMs Completion Date & Time |
yyyy-mm-ddThh:mm:ss.s ss+hh:mm |
The date and time the PROMs form was completed (or when the last item was recorded for incomplete records) If only the date component is captured, this can be provided without a time component, i.e. yyyy-mm-dd |
For PROMs, this is the date when the form is completed by the patient, e.g. 2020-12-10T13:30:10.999+00:00 | ||||||||||
PROMs Details |
MPRPX004X |
Referral Identifier |
50-character alphanumeric |
A locally-produced identifier which uniquely identifies the referral record All PROMs questionnaires associated with the same referral must have the same Referral Identifier |
Use NULL for missing or N/A values | ||||||||||
PROMs Details |
MPRPX004A |
Referral Identifier Origination |
N/A – code from associated value set |
The issuing system for the Referral Identifier, e.g. PAS |
Please refer to the technical specification for details Use NULL for missing or N/A values | ||||||||||
PROMs Details |
MPRPX005X |
PROMs Pathway Type |
N/A – code from associated value set |
The type of pathway that the PROM is associated to, e.g. lung cancer, heart failure, cataract, etc. |
e.g. KNA Please refer to the technical specification for details For local pathways, use OTH - Other | ||||||||||
PROMs Details |
MPRPX006X |
PROMs Tool |
N/A – code from associated value set |
The national code representing the PROMs tool associated with the PROMs record |
e.g. OKS2 Please refer to the technical specification for details For local tools, use OTH - Other | ||||||||||
PROMs Details |
MPRPX007X |
PROMs Trigger Event Type |
N/A – code from associated value set |
The national code representing the type of healthcare or administrative event that triggers a requirement for a questionnaire (or onboarding process) to be completed |
e.g. 14 - Pre-op assessment Please refer to the technical specification for details | ||||||||||
PROMs Details |
MPRPX008X |
PROMs Language |
N/A – code from associated value set |
The code representing the language of the completed PROMs form |
en=English cy=Welsh 71=Other | ||||||||||
PROMs Details |
MPRPX009X |
Local PROMs Pathway Type |
10-character alphanumeric |
A locally-defined code to identify the PROMs pathway This is only required for local pathways |
e.g. ZZKNA | ||||||||||
PROMs Details |
MPRPX010X |
Local PROMs Tool |
10-character alphanumeric |
A locally-defined code to identify the PROMs tool This is only required for local tools |
e.g. ZZOKS1 | ||||||||||
PROMs Details |
MPRPX012X |
PROMs Data Standard Version |
N/A – code from associated value set |
The version of the data standard used for the PROMs tool This is usually the DSC Notice reference number found at the top right corner of the associated DSCN |
e.g. 2023028 for EORTC QLQ LC13 Please refer to the technical specification for details | ||||||||||
PROMs Details |
MPRPX013X |
PROMs Trigger Event Date |
yyyy-mm-dd |
The date of the event that triggers a requirement for a questionnaire (or onboarding process) to be completed, irrespective of the date that the PROMs form was triggered/issued |
e.g. 2020-12-10 for a PROMs form triggered by a surgical event taking place on 10th December 2020 | ||||||||||
PROMs Details |
MPRPX014X |
Pathway Laterality |
1-digit numeric |
To capture the anatomical side associated with the healthcare referral / pathway record Note that if a patient had been referred onto a pathway for interventions to both left and right sides and the Referral Identifier was common to both, then the Pathway Laterality would be ‘both left and right’ |
| ||||||||||
PROMs Data Entry Details |
MDEPX004X |
PROMs Laterality |
1-digit numeric |
To capture the anatomical side associated with the questionnaire being completed Note that if a patient completes a questionnaire for both left and right sides, two records should be generated and labelled as per the specified value set Note also that this item is intended to capture the laterality specified as part of the patient’s PROMs pathway record as opposed to any patient reported laterality information which would be captured within the form itself |
|
PROMs Trigger Event Type
Definition: A type of healthcare or administrative event that triggers a requirement for a questionnaire (or onboarding process) to be completed.
Format: 2-digit numeric
Code |
Description |
Definition |
10 |
Onboarding |
To be used for onboarding purposes, i.e. when registering a patient to receive a questionnaire in the future. |
11 |
Primary care |
For a questionnaire that is to be completed in primary care, prior to a referral to secondary care. |
12 |
Referral |
When a questionnaire is to be completed following acceptance of a referral. |
13 |
Outpatient appointment |
When a questionnaire is to be completed following the booking of an outpatient appointment |
14 |
Pre-op assessment |
When a questionnaire is to be completed following the booking of a pre-op assessment appointment. This is the pre-admission outpatient appointment scheduled just before the admission to assess the patient’s fitness to undergo surgery. |
15 |
Intervention |
When a questionnaire is to be completed after a health/care intervention. This only applies following receipt of confirmation that the relevant intervention, e.g. surgery, took place. |
16 |
Discharge |
When a questionnaire is to be completed at the point of discharge, where a patient may be placed on a ‘see on symptoms’ or ‘patient-initiated follow-up’ pathway. |
17 |
Clinician-initiated |
This trigger event type is used when none of the other triggers apply and a questionnaire is to be completed at an undefined stage in the pathway at the request of a clinician. |
18 |
Patient-initiated |
This trigger event type is used when none of the other triggers apply and a questionnaire is completed at an undefined stage in the pathway. |
71 |
Other |
For use when no specific trigger event type applies. |
91 |
Unknown |
For use when the reason for triggering the questionnaire is unknown. |