A PROMs form can be issued to a patient at any point along their treatment pathway. Usually this occurs prior to, and at regular intervals following their treatment, as a means of measuring and monitoring the effectiveness of their treatment following an intervention, from the patient’s perspective.
This data standard defines the information specification, and serves as a basis for the development of technical and interoperability standards which, in turn, define the data extraction and communication mechanisms necessary to unlock data from PROMs applications for both national and local purposes, to enable analysis at patient and population level. The detail of these technical standards is described in the associated technical specification documentation.
The scope of this standard is independent of the platform or source application used to capture PROMs information, however it is limited to the nationally-validated PROMs tools. The composition of the associated PROMs data sets is described in separate DSCNs, one for each PROMs tool, e.g. Oxford Knee Score.
The metadata items defined in this DSCN comprise the following components or data modules:
•Patient Details;
•Document Details;
•Event Details;
•PROMs Details; and
•Data Entry Details.
This DSCN should be read in conjunction with the associated notices for each PROMs tool.
Furthermore, there are additional metadata items required for storage of PROMs records in a central document repository, e.g. the Welsh Care Records Service (WCRS). These are not a requirement for inclusion in the data set and central flow of data described in this DSCN, but the intention is for these to be added to that data set for consumption by the document repository, to enable access via the clinical record. For details of these items, please refer to the Document Metadata Standard.