A form can be issued to a patient at any point along their treatment pathway. Usually this occurs prior to, and at regular intervals following their treatment, as a means of measuring and monitoring the effectiveness of their treatment following an intervention from the patient’s perspective.
Standardised data is vital to effective central storage of data and, in particular, to the data linkage and analysis processes necessary to interpret the data to provide meaningful and consistent information via the aforementioned digital dashboards and data visualisation tools. This DSCN provides a standard coding structure and process for the central submission, storage and communication of data for Laterality – Knee PROMs questions.
This data standard defines the information specification, and serves as a basis for the development of technical and interoperability standards which, in turn, define the data extraction and communication mechanisms necessary to unlock data from PROMs applications for both national and local purposes, to enable analysis at patient and population level. The detail of these technical standards is described in the associated technical specification documentation.
The scope of this standard is independent of the platform or source application used to capture information, however it is limited to the nationally-validated or standardised questionnaires and PROMs tools. The composition of these questionnaires is described in separate DSCNs, one for each questionnaire.
Also defined is a set of metadata items which underpin the data in DSCN in an associated PROMS Metadata Standard. This comprises the following components or data modules:
•Patient Details;
•Document Details;
•Event Details;
•PROMs Details; and
•Data Entry Details.
This DSCN should be read in conjunction with the metadata specification and associated notices for related validated/standardised questionnaires and PROMs tools.